May 20, 2009

On the Eve of the Field Trip

Tomorrow is our first appointment at CHOP (Children's Hospital of Philadelphia) and it will be an all day affair. We have to be there between 9 and 9:15 in the morning and our last consultation is scheduled for 3 or 4 in the afternoon - a long day of testing, probing, assessing, conversing, praying. Speaking of praying, a group of people - who knows how large - from church are coming tonight at 7 to pray with us. If you think of it, you can join us at that time - 6 PM central, 8 PM atlantic. We've experienced a tremendous outpouring of support from people all over the country and Canada. We trust everything is in God's hands.

An update since my last post, which most of you are aware of. Our perinatologist at last Friday's appointment (5/15) said we have early severe TTTS, which pushed up our visit to CHOP. We have also been in contact with the doctor who pioneered the laser procedure, who consults with patients all over the nation. He lives and works in Wisconsin but talks with anyone who contacts him. He has urged Jeanine to be horizontal as much as possible - i.e., bedrest - and to drink Ensure for the protein boost. He believes that with as sick as Jeanine has been that she is malnurished which may also contribute to the differential in size of the babies. So beginning yesterday she's been confined to the bed/couch and hopefully a lawn chair soon to be in our possession. It's supposed to be in the mid-70s all week so it would be nice for her to get some fresh air.

That's the update for today. I'll try to post things as soon as we know what's happening tomorrow or the next day. Thanks for your prayers!

2 comments:

  1. Is the doctor from Wisconsin at Children's Hospital of Wisconsin? We now live 5 minutes from Children's of WI and are so blessed to be so close to such a wonderful hospital and clinic. Our son has had some medical issues so we know the clinics very well.
    Anyway, Holli passed along your blog to me and I will be praying for you!
    Lani (Van Someren) Knutson

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  2. Lani! Good to hear from you. The doc in Wisconsin is Dr. Julian De Lia, who is at Wheaton Franciscan Healthcare - St. Joseph in Milwaukee. Thanks for all your prayers.

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